I was almost assaulted in the park today. Another mother came at me after she heard these words out of my mouth..."early intervention".
She went into complete hysterics...
"Oh my God, my daughter is in early intervention. Why is your daughter? What is wrong with her? Is it chromosomes because my daughter has a chromosome deletion? My daughter's condition is rare...is it rare? When was it diagnosed? Who diagnosed it?"
At this point she took a deep breath and then proceeded her line of questioning.
"Have you had full genetic testing? Or just the chromosome blood test? Is she verbal? How old is she? Does she have a feeding tube?"
Not even bothering to get any answers other than my quick yes, no or maybe, she continued even further.
"I need your phone number. What is your name?"
It was nice of her to ask my name a half hour into the conversation. At this time she whipped out her cell phone and we exchanged phone numbers for what reason I still wasn't sure of. I didn't know what had hit me. But whatever this connection was, I liked it. I liked that she knew the difference between genetic and chromosome testing and when I told her we declined genetic testing she knew immediately why. I loved that when I said J doesn't have a feeding tube, but food aversions, she nodded her head and I knew she understood how serious food aversions can be. Basically, I loved that we spoke a language that no one else at the park could speak. The only way I can explain it...fun! My blood was moving again and I was energized.
I did confess to her that I didn't have other mothers to talk to. All my friends had typical children and didn't understand. We agreed to get our girls together to play. And...we also discussed team homeschooling after EI. We may have been jumping into that one, but there are so many possibilities when two people make a connection!
It's so nice to make connections! I was able to make some, even here in Oregon, by linking my blog on specific forums. There is a good special needs board on the Five in a Row forum. It's homeschool curriculum but it's literature based with quality picture books so it can be done for fun too. I'm getting ready to start it with C. He will like the same book 5 days in a row. H was done with the story after one or two readings. If you want to look at the teacher's manuals, just let me know.
ReplyDelete@wonderinthewoods
ReplyDeleteThat sounds great! I'm going to check it out. Thanks!